Monday, September 30, 2013

Baby Hulk ~ He Don't Need Yo Affirmation

     Lately I have been getting extra annoyed with the things people say to me about Baby Hulk or others with Down syndrome. It has taken a while to figure out why that it is. I have always gotten these comments so why is it bothering me so much now? There is the "God only gives special children to special people" (don't even get me started on that one!) and "Oh people with Down syndrome are always so happy" I have seen blog posts by other parents of kids with Down syndrome upset by all the things people say and I just finally realised why these things people say piss me off so badly. I figured it out shortly after I received some newspaper clippings about how scientists have figured out how to "turn off" the extra chromosome. Why do we need to fix my baby? He is fine. That's when I figured it out. It's like people feel the need to find some way to make things better, to make my baby's extra chromosome a positive thing. Sure in the beginning these comments were good. I was freaked out and upset and needed comforting but my child is 10 months old now! I'm over it and I love the crap out of that kid and he can kick your baby's ass any day! My baby is awesome and I don't need your positive spin on things, random stranger! I already know my baby is awesome. It would be like me coming up to you giving you a sideways, pitying smile and telling you, "Awe, all the blonde babies I know are always so agreeable!" ...yup... dumb.
     So please. I don't need you to try to make things better. My kid is awesome. It is nothing to be sad about.



     Baby Hulk is 10 months old now! He is soooo close to being mobile. He gets onto hands and knees and just bounces but still only goes backwards when he tries to crawl. He will travel across the living room backwards and often gets stuck under the coffee table. He claps too! Hooray! We are working on signing now. He doesn't sign back but understands some of the signs, like when I sign "mama milk" to nurse. He has signed milk a couple of times but I don't think he sees why he should have to when he knows I already know exactly what he wants. So if I sign, "milk" and try to get him to sign it back he just gets mad and screams at me as if to say, "Woman, you know what I want, now give me the boobies!" I am pretty sure he understands the sign for"no" too but what kid ever listens to that anyways?

     September 19th the South Puget Sound Up With Down Syndrome group had their first meeting after summer break and we finally decided it was time to see what they were all about. Darling Husband has gone to a couple of their board meetings to talk about his car event he put on but this was the first family friendly meeting for us. It was held at the Hands on Children's Museum. They brought pizza for everyone talked a little about the Buddy Walk that is coming up October 5th in Lacey, WA and then we all got to mingle and the kiddies played. I wasn't nervous to be going. Darling Husband kept asking me if I was. I really wasn't. Then we got there and I met a horribly tacky woman. Okay I never actually met her. I think she formed her opinion of me the moment she saw my LGBT Obama sticker on my car. She didn't look at me once. Just very loudly told her husband about the hilarious bumper sticker the other day that she totally forgot about (until she saw my bumper sticker of course)! "Ahoihoihoi (do that laugh in that hoity toity my feces have no odor kind of way) Oh honey, I saw the funniest bumper sticker the other day! It said Obama Bin Laden! Ahoihoihoi!!!" That tacky woman's poor husband looked soooo uncomfortable. Way to welcome the new people to the group, lady! To make matters worse with that semi racist comment, her son with Down syndrome is adopted... I know this because he is black.
     So we started on that note and then I was nervous! I really hadn't been before but then I realised the thing we all shared in common, the reason we were all meeting here was not going to be enough of a reason for some to be friendly and get along. I was on edge when we got to the room, it was back to reality and these were just people... I don't like people. They do what I was now doing, they judge. They see my blurple and pink afro and my kooky baby carrying ways and they make assumptions. I did the same. We had pizza, I honestly have no idea what that horrible woman did the rest of the night My slight terror of the whole thing kind of gave me tunnel vision and then I found families who were nice. After I made my assumptions I decided the people with the child in an ergo carrier were my people, they wear their kids in hip friendly carriers... Nope my thoughts of how things would go were wrong again. I need people to make the first move, they didn't so we never spoke. Another woman did engage me though. A woman who had somehow seen pictures of Baby Hulk in his hip helpers. I wanted to ask how she had seen pictures of him before but I didn't want her to feel like a creeper... I am a creeper myself so I personally don't think it is a bad thing but I know others do. I didn't want to call out her creeperness. She was nice but I think I was too young of a mom for her. When I told her how old I was she seemed to kind of backed off and started talking to another mom closer to her age. Oh well. Her loss I suppose. Baby Hulk and I spent the rest of the time hanging out on the floor playing with toys.
      I am glad we went though. I don't think I met any potential new BFFs but it was nice to meet the other families and also really nice to see how Lumpy and Mr. Grey interacted with the other kids. I already knew Lumpy would do fine since Tsunami is in his preschool class this year. He loves her and is always playing with her but I haven't ever seen Mr. Grey around another kid with Down syndrome. I was so happy to see him playing with one of the little boys there. He played nicer than usual even. He would hand balls to the little boy he was playing with so he could put it in the tube that sucks them up. He didn't even ask why the little boy had a tube in his nose or anything like I know I would have as a kid. He just played with him! All in all it was a good night.
     I can't wait for the Buddy Walk! Find your local Buddy Walk! If it hasn't happened already GO!

Thursday, September 5, 2013

Baby Hulk ~ What Happened to August!?

I said I would keep up with my posts over the summer...I don't know what has happened to the month of August! School has begun and my first child is in kindergarten! WHAT!?


Lets see if I can catch you up.

August 1st. I had plans for a big post because it's the beginning of world breastfeeding month and  I got right to getting over my fear of nursing in public by doing it at 503mph in a jet plane flying across the US! Baby Hulk's first time on a plane! We flew all the way to the other Washington! Our nation's capital and an excellent place to go to remind you why it's good to be an America! My hippy tendencies sometimes make it so I lose sight in the good. We didn't get to tour much. We were there for a family reunion. I got to meet family I had never even met and see some I haven't seen in years.

When we got home from our trip suddenly Baby Hulk could sit up on his own! It was pretty shocking. Then he started rolling back to his back again! I can't believe he is 9 months old already!!!

 He has gotten really good at feeding himself. Still no teeth but that doesn't stop him!
 I brought up that he didn't seem to realise he has opposable thumbs to Annie and she gave me some things I could do to help so now he can even grab tiny food like Cheerios. Mr. Grey got in big trouble the other day when a lego somehow ended up on Baby Hulk's playmat and Darling Husband had to fish it out of his mouth.

Speaking of Darling Husband, his event, South Sound Summer Jam was excellent! Everyone loved it! Stitches posted a little about it. She was really excited about the drifting part of it. I'll make sure to bring her to some events next year when it starts back up again.  I was a little disappointed in the venue. The people at South Sound Speedway were pretty gross (on the inside). I noticed when we got there how rudely the people at the gate were being to participants as they arrived. And then they tried to take the money from admissions! This is a charity event! You are trying to steal from a charity!?  So there was that and then the matter of the poor sportsmanship in the Evo group. I've talked about the awesome caravan of Evos from Darling Husbands previous meet & show. This huge group of Mitsubishi Lancer Evolution owners meet up and then roll in together. None of them came. I have no idea why but I really find it hard to believe that ALL of them were busy. I don't know if they were protesting the drifting or what., but this was the first of this new event and he is one person. There was still the car show, he can't cater to everyone!  Once again it was CHARITY though! Not just some meet where they get together and park their cars in a parking lot and take pictures for the hell of it. It was for a cause. If you can't tell that really steamed my broccoli. I really thought they were a cool group before but now they just seem kind of high school to me.** Despite their lack of support and the sliminess of the speedway Darling Husband still raised $6,850! I am so proud of him. I can't wait to see what he comes up with next year!


And now for some sad news. Baby Hulk has pink eye! Poor baby!
 
When we woke up yesterday to get Mr. Grey ready for his first day of school I noticed it was a little watery, then at the school it started getting goopy and he fussed when I tried to clean it. By the time we left the school it was getting red and suddenly there was a big glob of green goop. I thought I would get a nice day to relax but ended up spending the morning at the doctor's. His eye drops are working splendidly already, and I discovered a new trick to keeping up with them.
 4 times a day for 5 days, this way I can keep up!

August is over. The rain has started to sneak back in and the temperatures are dropping. I am ready for fall. I am ready to send the big kids to school, curl up on the couch with my sweet baby and enjoy the silence. Or the baby babbling, whichever one it is.




**these are my personal observations and not those of Darling Husband